I am trying to find out more about this
Treatments etc etc
Aaliyah has her EEG this Friday she been having lost of episodes :(, and my Pead seems to think she does have this.
She freezes and eyes droop or does this weird blink, is unresponsive for 10sec even a little longer then she swallows then comes out and has no idea.
She been very tired lately and her reading has been affected , she was top of class last year now she in a recovery program:confused:.
Will had the EEG at 10.30am Friday so I am hoping we find out more.
Thanks for your time
Kristie
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#2
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Posted 22 March 2010 - 02:55 PM
we had similar problem with DS when he was 4. Except his happened as he was drifting in and out of sleep. one side of his body would go stiff and he would turn his whole body to that side and look like he was trying to turn himself inside out. It was scary. We ended up in hossy for a week having tests and ended up on medication. However 12 months later he came off the medication and we haven't had any problems since. When it presents in kids like this most of the time they grow out of it. Very few of them have problems as an adult
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#3 *Amy and Mikenzee*
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Posted 22 March 2010 - 03:44 PM
Hey
Absent seizures can be the heardest to control, the reason being is they need to find a balance between getting the meds to stop the absent seizures but not letting the meds dull them out to much KWIM, Alot of neuros wont medicate for absent seizures unless they ae causing a problem and in your DDs case it sounds like they are.
An EEG checks teh brain signals and patters and can pick up epilipsy and some seizure disorderds but not all, If it does show them up it wil show what exactly in the brain s causing it ths makes its aot easier to treat as certain meds to certain things. If the EEg is clear but the neuro and your self know she is having them then unfortunately medcatin is a bit of a guessing game as to what works, Generaly epililim can be one that works for absent seizures and is usualy the first line treatment.
Another way they manage seizures is with a ketonic diet that is cutting out aall carbs (think atkins but to the extream) it sounds all good and well to control with diet but it is a hard diet for kids to be on (especaly oral feeding kids like your DD), so theey usualy try the meds first.
I hope you get some answers.
If you ever want to chat feel free to PM me, My DD has been having seizures for years so i know what your going through HUGS
Absent seizures can be the heardest to control, the reason being is they need to find a balance between getting the meds to stop the absent seizures but not letting the meds dull them out to much KWIM, Alot of neuros wont medicate for absent seizures unless they ae causing a problem and in your DDs case it sounds like they are.
An EEG checks teh brain signals and patters and can pick up epilipsy and some seizure disorderds but not all, If it does show them up it wil show what exactly in the brain s causing it ths makes its aot easier to treat as certain meds to certain things. If the EEg is clear but the neuro and your self know she is having them then unfortunately medcatin is a bit of a guessing game as to what works, Generaly epililim can be one that works for absent seizures and is usualy the first line treatment.
Another way they manage seizures is with a ketonic diet that is cutting out aall carbs (think atkins but to the extream) it sounds all good and well to control with diet but it is a hard diet for kids to be on (especaly oral feeding kids like your DD), so theey usualy try the meds first.
I hope you get some answers.
If you ever want to chat feel free to PM me, My DD has been having seizures for years so i know what your going through HUGS
#4
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Posted 22 March 2010 - 03:54 PM
I have a little treasure in my class (teacher) with this. Its really hard. It happens often and it is affecting her learning. They are trying to get the meds right. Totally not fair on them.
Hopefully you will be able to find out more on Friday, must be hard for her and yourself.
Hopefully you will be able to find out more on Friday, must be hard for her and yourself.
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#5
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Posted 22 March 2010 - 06:28 PM
I had something very similar to this as a child. It was called Petit Mal and is a form of Epilepsy. I think it's called something different now. It began when I was 8 or 9 and my mother noticed it after I had an absence seizure in the middle of a school play:eek: I never was able to recall the seizures, but I always knew that I'd had one. And they could last up to 30 seconds (rare though, they usually only lasted 10-15 seconds)
It's most common in children. And usually, they grow out of it by adulthood:). I havent had a seizure since I was around 13. Stress is known to bring on more seizures as are bright flashing lights. You may notice your daughter's hands shake a bit more too, this apparently is another symptom.
I was on two medications, Epilim and Tegretol. Twice daily. I would have regular blood tests, EEG's and was pretty carefully monitored by a very good pead. And once I was on the meds, the seizures reduced significantly.
Good luck with your dd. I can understand that this must be extremely stressful for you. I hope your pead. finds the best course of treatment quickly. If you want to chat at all, please feel free to PM me too:).
It's most common in children. And usually, they grow out of it by adulthood:). I havent had a seizure since I was around 13. Stress is known to bring on more seizures as are bright flashing lights. You may notice your daughter's hands shake a bit more too, this apparently is another symptom.
I was on two medications, Epilim and Tegretol. Twice daily. I would have regular blood tests, EEG's and was pretty carefully monitored by a very good pead. And once I was on the meds, the seizures reduced significantly.
Good luck with your dd. I can understand that this must be extremely stressful for you. I hope your pead. finds the best course of treatment quickly. If you want to chat at all, please feel free to PM me too:).
#6
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Posted 26 March 2010 - 11:21 AM
[INDENT]Sorry taken me so long to respond but i am finding hard to atm
we will be formally diagnosed with epilepsy Monday
meds and plan action will start, the EEG was scary every test they did she have seizure i was broken i knew she was but it real now.
I do now i have to pull my self together but just so scary i know Aaliyah will be treated now and been told that she been on meds for years or even for ever.
I can't wait till Monday they said if was very bad they call Pead this arvo and i am pray we don't get call to say it bad.
Thanks so much again for advice
Ta Kristie
[/INDENT]
we will be formally diagnosed with epilepsy Monday
meds and plan action will start, the EEG was scary every test they did she have seizure i was broken i knew she was but it real now.I do now i have to pull my self together but just so scary
i know Aaliyah will be treated now and been told that she been on meds for years or even for ever.I can't wait till Monday they said if was very bad they call Pead this arvo and i am pray we don't get call to say it bad.
Thanks so much again for advice
Ta Kristie
[/INDENT]
Kristie Mumma to Aaliyah 8,Makayla 6,Jordan 4 & Kiera just new :)
#8 *Amy and Mikenzee*
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Posted 26 March 2010 - 11:33 AM
HUGs, I know how daunting it can all be, Just think with the diagnosis comes a treatment plan, As heart breaking as it is to be told that she has epilepsy the positive out of it is that this can really help her, once she is on her medication and the seizures are under control she can start to get back into her school work etc
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